Sharing Your Genes With The World

By Eric Blair
15:00, October 21st 2008
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Sharing Your Genes With The World

As part of their project on http://www.personalgenomes.org, a group of enthusiastic scientists and researchers are taking the first step in what they believe will be a move that will greatly help the development of genetics and genome mapping. They stated on Monday that ten of them, led by Harvard Medical School genetics professor George Church, are going to publicly post information about their medical records and a partial genome map covering about a fifth of their genes.

The ten participants, nine researchers and a science editor at the Duke University Institute for Genome Sciences & Policy, comprise the first phase of the program which has been approved by Harvard's ethical review board earlier this year. The program ultimately aims to sequence and publicly post the genes of about 100,000 informed participants.

The goal of this program, according to Harvard, is to make personal genome sequencing more affordable and accessible.

Aside from that, Church hopes that the project will spark more general interest in the field of genetics. “This will allow anyone to look at the human genome and correlate variations with individual human traits,”' he said. “I'm hoping we'll attract amateurs, like amateur astronomers looking for meteors, who will find new breakthroughs or get the next generation of kids excited.''

Church says that the importance and potential impact of having such vast and readily available genetic data, linked with personal traits such as height, weight, ethnic background and such cannot be stressed enough. It opens up vast possibilities for advances in medical science. Nevertheless, he does admit that genetic oversharing could be dangerous, as participants could find themselves facing discrimination by health insurance companies or potential employers, if they knew they were predisposed to certain illnesses.

"Some of them know they're going to get hurt, like astronauts and mountain climbers," Church says. "But if enough of them see a benefit to themselves, their families, and society, then it will keep growing."

Precisely such concerns have prompted Congress to pass the Genetic Information Nondiscrimination Act which prohibits insurers or employers from discriminating against people based on their genetic information. The law has passed into effect since May.



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