The House of Representatives in a near-unanimous vote (414-1)
approved the Genetic Information Nondiscrimination Act of 2008 on Thursday.
The law forbids employers and insurance companies from using
genetic tests showing people are at risk of developing cancer, heart disease or
other ailments to reject their job applications, promotions, health care
coverage or in setting premiums.
According to National Human Genome Research Institute, each
person has six or more genetic mutations that place him/her at risk for some
disease. Genetic testing can show whether a person is a carrier for a genetic
disease or whether a person has an inherited disposition to a certain disease
before symptoms start.
Supporters of the bill, which is soon expected to be signed
into law by President George Bush, called it “the first major civil rights act
of the 21st century.”
“By freeing people from fear of genetic discrimination, we
can unlock the tremendous life-saving and cost-saving potential of genetic
research. By prohibiting the improper use of genetic information, Americans
will be encouraged to take advantage of the tremendous life-altering potential
of genetic research. This legislation marks the beginning of a new era,” said
Democratic Rep. Louise Slaughter of New
York, chief sponsor of the bill, according to
Reuters.
The bill passed the House a week after being approved by a
95-0 vote in the Senate and it is the result of a hard-fought 13-year battle to
pass the bill. In fact, this is the fist time when the bill has such an
overwhelming support. Similar bills faced opposition from employers and
insurers in the past and also skepticism from lawmakers over its necessity.
Researchers have long supported the bill because Americans
have been declining to take genetic tests or have been refusing false names and
paying cash because they didn’t want the information used against them by their
employer or insurance company, Francis Collins, head of the National Human Genome
Research Institute said, according to the Associated Press.
Researchers also said a fear of discrimination prevented
thousands of patients at risk of genetic disease from taking advantage of tests
that might help them make better health care choices. These patients either try
to persuade medical professionals not to enter the test results in their health
records or keep the information secret from their doctors.
Moreover, people refused to participate in valuable
research, setting back work that could lead to better treatment of diabetes,
heart disease and other common conditions, scientists said.
"What this will do, hopefully, is make people feel more comfortable in
participating in these research studies because, scientifically, it is clear
that is where we have to go," said Michael Watson, executive director of
the American College of Medical Genetics,
representing laboratory directors and doctors.