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Harvard University’s Medical School is in preparations to
begin a research called the Personal Genome Project which aims at speeding the
medical progress by providing genetic information from about 100,000
participants.
The volunteers involved will agree to make all their
information public once their DNA will be decoded. This includes disease
history, medications, allergies, ethnic backgrounds and also photographs and data
on other aspects from food preferences to television viewing habits. Because
the research will include all these aspects, it doesn’t strictly fall into the
scientific experiment category, being also considered a social study.
“We don’t yet know the consequences of having one’s genome
out in the open,” said George M. Church, a human geneticist at Harvard who is
the project’s leader and one of its subjects. “But it’s worth exploring.”
Aside from the people excited about the upcoming events,
there are also some who criticize the project, saying that the people involved
don’t really understand what they are getting themselves into, because by
disclosing all this information, which is generally regarded as private, they are
exposed to certain risks that cannot be fully understood at this point.
“I’m concerned that this could make it seem easy and cool to
put your information out there when there is still a lot of stigma associated
with certain genetic traits,” said Kathy Hudson, director of the Genetics and
Public Policy Center at Johns Hopkins University. “There will be new uses of
this data that people can’t anticipate — and they can’t do anything to get it
back.”
Even after listening to these warnings, people tend to think
of the good that such a project could do, as the scientific advancement would assist
many people with their medical issues.
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